Sunday, April 15, 2018

More good news than bad

So much have changed since the last update and I think there's more good news than bad news.

I've been put on a new medication called amebaciclib (brand name is Verzenio). It was recently approved by the FDA September 2017. It's supposed to be better than my previous drug since it's the only drug that is approved to treat HR+ HER2- metastatic breast cancer (what I have) as a stand alone drug. It's also supposed to be easier on my immune system than the previous drug. 

The bad news is that I experienced very bad side effects with this drug, mainly nausea and vomiting. The first two days that I was on the drug, I couldn't go 15 minutes without throwing up. I could not keep any sort of food down and basically was miserable the entire two days. I had to stay within 20 feet of the toilet or else bad things would happen. Priyanka was in Toronto for that whole week so I was very close to asking my sister to come and stay with me because I couldn't go anywhere on my own. Priyanka and Megan both ordered Amazon Prime delivery and got me some yogurt drinks because I couldn't handle any solid food. 

I emailed my doctor and said that I'm throwing in the towel because I just couldn't handle all of the vomiting. My doctor prescribed two anti-nausea medications. So I gathered all of my strength, prepared myself with poop bags in my pocket, which were great for vomiting, and drove to the pharmacy for the anti-nausea medications. Well, they worked very well after the first few tries because I kept throwing up the anti-nausea medications. Ironic, isn't it? After that I was able to get back to my normal life again. I went back to the office three days a week. 

My life has been normalizing slowly. 

One day, I felt like I could do some push ups. I talked to Lidia about it and she said: "If your mind is there, then your body is ready." So I went home and found out that I could do four push ups! I was so happy to know that after being non-active for almost a year.

Edited: As suggested by Indu, here's the video of me push-up-ing



I also went back to feeding my feral cats for the first time and managed it pretty well. So many little victories to celebrate. 

Recently, I was able to walk 1 mile somewhat comfortably. Somewhat because toward the end of the walk, my new artificial hip was hurting and being stiff so I had to kind of hobbled along. But that is also another small victory of me getting my strength back. 

The only thing that is still bothering me a lot is how gravity is hurting my back as the day goes on. I feel like that is the last thing I need to get over to get back on being my normal self. That is also something else to be worked on. I've been thinking on how to solve this problem and I think I would need to strengthen my back muscles a lot to 1) bring it back to its normal strength and 2) once it's strengthened it can hold me upright against gravity much better. So I'm going to embark on my slow and careful journey to strengthen my back again. I do know some exercises that specifically target the back muscles so I'll be working on that slowly. 

My plan right now is to improve myself slowly and surviving until the next drug is approved to keep me alive a bit longer. Then the cycle will continue. Someone on Quora who has cancer said "I know that I'll die someday, but today I am alive." 

Today I am alive. 

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